Progressive neurological disorders impact on patients' daily lives

Articles in Press

Document Type : Original Quantitative and Qualitative Research Paper

Authors

Sciences and Engineering of Biomedicals, Biophysics and Health Laboratory, Higher Institute of Health Sciences, Hassan First University, Settat 26000, Morocco

10.22038/ebcj.2025.86813.3109

Abstract

Background
Progressive neurological disorders (PNDs) are a real public health challenge. They have a significant impact on patients’ quality of life. Limited research exists on PNDs social impact in Low and Middle Income Countries context.
Aim
We aim to explore the main changes that PNDs patients’ daily lives undergo on the physical, social, professional and financial levels, and suggest ways to improve policy management.
Method
This is a cross-sectional study conducted in the third quarter of 2024. which targets patients in diagnosed with PND within the last 12 months. A survey developed by the authors focused on social and professional activities and financial stability, distributed through social networks groups.
Results
Data collection gathered 89 responses. We observe low regular health monitoring (59.5%), insufficient pain medication prescriptions (33.7%), significant decrease in social activities (t=4.920; p<0.005), and occupational activities (t=3.689; p<0.005) accompanied by a need of financial support for a large number of patients.
Implications for practice
The findings advocate for the implementation of specific health programs to manage PNDs from diagnosis to palliative care, build a national database and develop research.
Recognition of PNDs as disabilities and the development of intersectoral collaborations will improve prevention, but also living conditions of patients, through the facilitation of work-retention and extension of social coverage.
Awareness of professionals, community and policy makers must also be strengthened to ensure this category of disease visibility.

Keywords

Main Subjects

Evidence Based Care

Articles in Press, Accepted Manuscript
Available Online from 17 June 2025

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